“It is time again for an Evan update! We are happy to share the great news that his most recent MRI results are stable and decreased once again and no evidence of tumor tissue! He has been so blessed with prayers and encouragement and he shares that with everyone he meets. He does not miss an opportunity to tell his story. He has voluntarily been part of a quality of life panel and has spent two evenings “giving back” by being a demonstration patient for Emory students in the rehabilitation therapy program. It is his second year to be a part of the program and he enjoys the time with the students, other patients and the therapists.

Sadly his physical therapy sessions have come to an end because all the insurance benefit has been used. We can only say wonderful things about the Emory rehabilitation facilities and the therapists that work so hard to help their patients. They have done everything possible to prepare us to continue Evan’s exercises at home. We will miss them since we do not have coverage for 2018. Once again Aetna is discontinuing coverage and there is no policy available to Evan. Please, please pray that insurance will be  available from someone for next year. We have contacted doctors, insurance brokers and state market insurance but have been unable to secure coverage. Blessedly, Evan’s chemotherapy is completed, but he still must take seizure prevention medicines and he remains in the surveillance stage that requires periodic MRI and oncology visits. We know God can provide and appreciate prayers “sent up” on Evan’s behalf.

The service dog is progressing well and is now training to be at Evan’s side ready for Evan’s needs. It is so great to see the two of them working together under the guidance of Top Dogg and the other trainers.

Evan’s days are busy. No laying in bed all day is on the schedule! He has a regular time to be up every day and must make it to countless appointments. But we do build in some fun! He still has his lego building therapy for afternoons at home. He was blessed with a visit from friends from NC and a trip to Chick-fil-A with Jon who decided to “carry the weight” (backpack) and treated Evan to lunch. The backpack that is big on Evan’s mom is so small on Jon! He can be on our team any day. He and his wife spent the weekend and it was a wonderful time of Christian fellowship. Thank you Jesus. We also were blessed with a new baby in the family. Evan’s dear friend and college roommate have shared their new baby boy with “uncle Evan.” It is exciting to have a new little one.

We found time one Friday evening to visit a wonderful corn maze and activity area with Evan’s sweet nephew Brylon. We all had fun and did not even get to the corn maze. That would have been more walking than Evan can do. Brylon was having fun with various activities while Evan was sharing his story with everyone on the hayride as we sat around the corn pit.

Evan works to stay busy and active but each day requires a nap because he wears out quickly. We are working to increase his stamina but it takes a great deal of core energy to get limbs to function that don’t know they are supposed to walk and lift.

We shared previously that Evan’s father was diagnosed with thyroid cancer. Thank you to all who prayed for him. His surgery went very well and was less involved than the doctors originally anticipated! The cancer had not spread to the lymph nodes and he healed so well that the doctor was amazed. We know that was God’s blessing. So the decision was made to put him on surveillance with bimonthly blood testing for thyroid hormone and ultrasounds instead of radioactive treatment. The hope is that the testing will show good results and the radioactive treatment will not be necessary in the future. It looks very promising. He has been recovering well and hopefully we can travel soon so Evan can begin visiting friends and places on his wish list. We put a hold on plans while his father was so ill.

It has been one year and five months since Evan’s diagnosis and surgery. There have been many obstacles and medical hurdles to overcome but Evan has remained determined to share the story of his blessings and to continue working toward the best recovery possible. So He will continue his exercises at home and has begun water exercises at the YMCA. A recent visit with the rehabilitation doctor went well and he believes Evan shows great promise to regain a normal walk if he returns to therapy next year. Thank you for the blessings and support that have allowed Evan’s parents to alternate caring for him. Without the blessing of financial support, Terry and I would both need to work full time and Evan would have missed many therapy appointments that have helped him to walk. His left arm still does not function but shows promise with time and work. We appreciate the prayers and sacrificial donations.” – Denise Moon

“It is time again for an Evan update! We are happy to share the great news that his most recent MRI results are stable and decreased once again and no evidence of tumor tissue! He has been so blessed with prayers and encouragement and he shares that with everyone he meets. He does not miss an opportunity to tell his story. He has voluntarily been part of a quality of life panel and has spent two evenings “giving back” by being a demonstration patient for Emory students in the rehabilitation therapy program. It is his second year to be a part of the program and he enjoys the time with the students, other patients and the therapists.

Sadly his physical therapy sessions have come to an end because all the insurance benefit has been used. We can only say wonderful things about the Emory rehabilitation facilities and the therapists that work so hard to help their patients. They have done everything possible to prepare us to continue Evan’s exercises at home. We will miss them since we do not have coverage for 2018. Once again Aetna is discontinuing coverage and there is no policy available to Evan. Please, please pray that insurance will be  available from someone for next year. We have contacted doctors, insurance brokers and state market insurance but have been unable to secure coverage. Blessedly, Evan’s chemotherapy is completed, but he still must take seizure prevention medicines and he remains in the surveillance stage that requires periodic MRI and oncology visits. We know God can provide and appreciate prayers “sent up” on Evan’s behalf.

The service dog is progressing well and is now training to be at Evan’s side ready for Evan’s needs. It is so great to see the two of them working together under the guidance of Top Dogg and the other trainers.

Evan’s days are busy. No laying in bed all day is on the schedule! He has a regular time to be up every day and must make it to countless appointments. But we do build in some fun! He still has his lego building therapy for afternoons at home. He was blessed with a visit from friends from NC and a trip to Chick-fil-A with Jon who decided to “carry the weight” (backpack) and treated Evan to lunch. The backpack that is big on Evan’s mom is so small on Jon! He can be on our team any day. He and his wife spent the weekend and it was a wonderful time of Christian fellowship. Thank you Jesus. We also were blessed with a new baby in the family. Evan’s dear friend and college roommate have shared their new baby boy with “uncle Evan.” It is exciting to have a new little one.

We found time one Friday evening to visit a wonderful corn maze and activity area with Evan’s sweet nephew Brylon. We all had fun and did not even get to the corn maze. That would have been more walking than Evan can do. Brylon was having fun with various activities while Evan was sharing his story with everyone on the hayride as we sat around the corn pit.

Evan works to stay busy and active but each day requires a nap because he wears out quickly. We are working to increase his stamina but it takes a great deal of core energy to get limbs to function that don’t know they are supposed to walk and lift.

We shared previously that Evan’s father was diagnosed with thyroid cancer. Thank you to all who prayed for him. His surgery went very well and was less involved than the doctors originally anticipated! The cancer had not spread to the lymph nodes and he healed so well that the doctor was amazed. We know that was God’s blessing. So the decision was made to put him on surveillance with bimonthly blood testing for thyroid hormone and ultrasounds instead of radioactive treatment. The hope is that the testing will show good results and the radioactive treatment will not be necessary in the future. It looks very promising. He has been recovering well and hopefully we can travel soon so Evan can begin visiting friends and places on his wish list. We put a hold on plans while his father was so ill.

It has been one year and five months since Evan’s diagnosis and surgery. There have been many obstacles and medical hurdles to overcome but Evan has remained determined to share the story of his blessings and to continue working toward the best recovery possible. So He will continue his exercises at home and has begun water exercises at the YMCA. A recent visit with the rehabilitation doctor went well and he believes Evan shows great promise to regain a normal walk if he returns to therapy next year. Thank you for the blessings and support that have allowed Evan’s parents to alternate caring for him. Without the blessing of financial support, Terry and I would both need to work full time and Evan would have missed many therapy appointments that have helped him to walk. His left arm still does not function but shows promise with time and work. We appreciate the prayers and sacrificial donations.” – Denise Moon